Welcome

This blog is for every parent who asked why and didn't get an answer.

Asked the questions; "Where do I go next?" "What do I do?" "Who can I talk to?" "I want to cry and I"m so scared; who is out there for me?"

Every diagnosis of Autism or Autism Spectrum Disorder is not the same nor the parents experience. But, we can pull together, share our thoughts and have a safe community to go to. That is what I envision this place to be. A haven for self, family and our children.

Much love and faith to you on your journey.

Friday, February 1, 2013

Two steps forward....and three steps back

Good morning!  It's been fun today.  Cary had a decent nights sleep (yet ate pita last night) and had a major meltdown over getting his cuticles clipped.  He often has long pieces of skin that grow out from his cuticles.  (He picks at them so we have to keep them clipped or they get infected).  So, he freaked out!  Crying, screaming, shrieking.....It wasn't pretty.  It made me cry, Chris was frustrated...I can't explain how it feels when they have an experience like that. 

I had to do the pressure hug (calms the nervous system), talk softly, and then get out the door in time for speech!  Better than coffee to wake you up.

While Cary was in speech; Chris and I had a chance to talk.  It's not always an Autism thing.  Some of it is probably Cary growing up but not ready to grow into what he is feeling or how is body is changing.  It's a sensory thing.  Chris couldn't understand how he could do it before and now, it just couldn't happen.  EX:  About a year (maybe a little less) before Cary was diagnosed, I took him to Sport Clips to get his haircut.  He had managed to get to the point of sitting in the chair by himself with a sucker.  One day, we pulled up and he started shrieking; out of the blue.  No rhyme, reason or explanation.  So, it's been Grandma ever since.  (We had a brief stint with another lady in Kingwood.  She was good.  Maybe we should go back).

So, it doesn't always matter, it just happens.

Then, he had a great day in Speech.  Greeted people in the hall way, looked them in the eye, appropriate responses; good coversation.  His therapist is really pleased.  (He has had the same one for 3 years.)  Had some trouble with retelling a story; but a good day all in all.

Beauty for ashes.....But it's all good.  Tacos after then the park.  A little schoolwork and it's been a good day.  Papa is off to an interview and I"m off to work.  My little man will be hangin' with Grandma.

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